European Cancer Organisation

Preliminary Programme

Friday 7 September 2018

12:00 - 12:15

Welcome and introduction to Summit

12:30 - 13:00

Guest Speaker Keynote

13:00 - 15:00

Outcomes Research: Adopting a 20 year mindset – the paradigm shift required


With cancer incidence rates expected to grow by 68% worldwide between 2012 and 2030, matching the promise of new science and treatment options with continually constrained public finance points to a more value-based landscape for rewarding innovation. It is right to demand more evidence and further certainty in respect to the real life benefits and outcomes achieved by current and potential models and modes of cancer care. It is to this need that outcomes research is addressed, a branch of public health research, which studies the outcomes of the structure and processes of the health care system on the health and well-being of patients and populations.

Yet obstacles remain in the path of progress, with identifiable gaps in the data infrastructure, research landscape, and international multi-stakeholder agreement on matters such as data sharing, ownership and protection.

15:00 - 15:30

Refreshment Break

15:30 - 17:30

Big Data – who’s in charge?


Stakeholders recognise the benefits big data can bring to research and improvement of care and treatment for cancer. However its full realisation is unlikely to occur without leadership, responsibility, strategy, direction and implementation.

What aspects of leadership and responsibility appear to be presently missing in terms of bringing big data opportunities to fruition, to whom should these leadership roles be assigned, and where does accountability reside? Implicit within this discussion is considered reflection on whether the realisation of a big data-driven future in research requires the strong hand of government-led efforts, or whether responsibilities are of a more shared and distributed nature?

Saturday 8 September 2018

9:00 - 10:30

Improving efficiency in cancer care: how can multidisciplinarity make a difference?


The session will:

  • Highlight latest research on patient experience and perspective in respect to inefficiency in cancer care and opportunities for improvement

  • Explore the role of multidisciplinary cancer care in  addressing inefficiency in cancer care (e.g. reducing delays and unnecessary interventions, and improving outcomes)

  • Share early work by the Innovative Partnership on Action against Cancer (iPAAC) on meeting the challenge of waste and inefficiency in cancer care across Europe

  • Reflect on conclusions from 2018 research on waste and inefficiency in cancer care by the Swedish Institute for Health Economics (IHE)

10:30 - 12:00

Integration of cancer care: the essential requirements


It is recognised that a multi-disciplinary and patient-centric approach is required to achieve integrated cancer care, central to attaining the best outcomes and quality of care for patients. But how do we move beyond the shared aspiration of integrated cancer care, to its real-life practice in daily reality? ECCO and primary care partner organisations have grappled with this question as part of a project to define “the essential requirements for primary care interventions throughout the cancer care pathway”. The outcomes of this work will be presented at the session, before inviting participants at the Summit to help finalise consensus resolutions on the topic via live voting technology.

The resolutions will include time-based targets for improvement, supported by assignment of responsibilities for achieving the goal, and underpinned by tools to aid implementation. Draft versions of the resolutions will be published for consultation in advance of the Summit.

12:00 - 12:30


12:30 -14:00

Quality in cancer care: how to demand it, measure it and implement it


We all want quality cancer care, but how can we describe what it consists of, acquire a reliable measure of the level of quality of cancer care being delivered, and succeed in implementing improvement?

To these three questions a range of expert contributors will share insights and advice ahead of the audience being invited to vote on a series of Summit resolutions intended to provide answers. The resolutions will include time-bound goals, assignment of responsibilities for their delivery, and a publicly available toolkit to support their implementation. Drafts of the resolutions will be published for consultation ahead of the Summit. Please visit here for further information.

Important reference will be made during the session to the ECCO Essential Requirements for Quality Cancer Care (ERQCCs) as well as the activities of the Innovative Partnership on Action against Cancer (iPAAC) in respect to improving governance of cancer care.

14:00 - 1600

Access and Value: Its about the entire cancer pathway


Those involved in cancer care know well the transformative impact of non-pharmaceutical treatments and care. Improving patient outcomes is about so much more than new medicines. Yet this does not seem adequately reflected in the current access debate.

Part 1 of the session will examine the potential for applying scales for assessing value in the pharmaceutical domain to innovations in the non-systemic treatment sector (e.g. radiation oncology and surgery).

Part 2 of the session will examine how the role of professional care to cancer patients, and other interventions, can be better valued and recognised within national health systems.

16:00 - 16:30

Refreshment Break

16:30 - 18:00

Putting a price on cancer medicines: the challenges and prospective solutions


The good news? Scientific advances are bringing forward new hope for cancer patients through emerging novel forms of treatment such as immunotherapy, targeted therapy and precision medicine. The bad news? Countries around the world continue to struggle with the headache of how to meet their cost.

This Summit session will invite a range of stakeholders to spell out the top challenges in the current pharmaceutical pricing and access environment, presenting concrete proposals for improvement.

Summit attendees will vote to record their preferences and responses to the proposals made.

Sunday 9 September 2018

09:00 - 11:30

Survivorship: The next frontier of cancer care improvement


In this multi-sectioned, and patient-led session the current scenario of cancer survivorship in Europe will be reviewed and discussed building on patient case studies and latest evidence. Drawing together all three pillars of the Summit (Outcomes Research, Health Economics of Cancer Care, Organisation of Cancer Care Delivery), this concluding session will reflect on key survivor issues, including as well legal and regulatory matters, such as:

  • survivor access to financial services,

  • ‘the right to be forgotten’, and,

  • the return to normality


Refreshment Break

12:00- 13:00

Patrick Johnston Memorial Lecture




PLEASE NOTE: The programme schedule is subject to change. 

PRINT THIS PAGE Page last modified: